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Barbara Ansell National Network for Adolescent Rheumatology (BANNAR)

BANNAR is a group of interested and committed professionals from medical, nursing and allied health backgrounds working in adolescent and young adult (AYA, aged 10-24) rheumatology. We aim to provide a network across the UK to develop, facilitate and oversee a national research portfolio for AYA rheumatology. We meet twice a year and have regular email/telephone contacts between meetings. One of our first projects has been to co-design, with young people, a process to engage AYAs with rheumatic disease with BANNAR specifically and with AYA rheumatology research more generally.

We develop, facilitate and oversee a national research portfolio for AYA rheumatology. We are a central point of reference for researchers and policy makers and provide signposting to relevant resources. We want to engage young people and their families, as well as professionals, with research to improve the evidence base for, and the clinical care of, young people aged 10-24 years with rheumatic disease.

Please join us! Membership is always open and we look forward to hearing from you.

Our name is a tribute to the pioneering work of Barbara Ansell and we are funded by a grant from the UCL Arthritis Research UK Centre for Adolescent Rheumatology. For any questions or if you would like to know more, please contact our administrator brenda.bell@ucl.ac.uk or Chair rachel.tattersall@sth.nhs.uk.

Aims

To oversee a national research portfolio covering the spectrum of disease and research methods in AYA rheumatology.


To act as a central point of reference for researchers and provide signposting to relevant resources.

Aspirations

To engage young people and their families with research.

To improve the health of AYAs with rheumatic disease across the UK by directing the research into these conditions.

Guidance

BANNAR has recently published guidance on involvement of young people in rheumatology research:

Interim guidance document

Whilst waiting for the results of the BANNAR YOURR (Young People's Opinions Underpinning Research) project, interim guidance to assist rheumatology professionals to ensure meaningful and appropriate involvement of young people in research is provided here.

Mapping document

As part of the YOURR project, a mapping exercise to identify existing models of good practice in the UK was conducted and the report of this work - "Summary of good practice when involving young people in health-related research" is available here.


BANNAR is funded by a grant from Arthritis Research UK and is linked to the Centre for Adolescent Rheumatology.

& Us is RCPCH's platform for children, young people, parents, carers and families to join the College in improving child health. For more info see here.

'Health research: making the right decision for me' - a short animation produced jointly by the Nuffield Council on Bioethics & Mosaic Films. See here.